Don't Get Your Kids' Genes Sequenced Just To Keep Up

06 Jul 2015 11:07 #1 by ScienceChic
Don't Get Your Kids' Genes Sequenced Just To Keep Up
By Nancy Shute, NPR News Jul 2, 2015

You can now order genetic tests off the Internet and get your child's genome sequenced for less than the cost of a new car. The question is, should you?

Almost certainly not, according to the American Society for Human Genetics , which released a position paper Thursday intended to give parents some help navigating the dizzying world of genetic tests.

"This is something that we don't think is ready for prime time for kids," says Dr. Jeffrey Botkin, a professor of pediatrics at the University of Utah and lead author of the paper.

"At the present time," the report notes, "the contrast between our ability to identify genetic variants and our ability to fully interpret the information gives rise to the many ethical issues in this domain."

- See more at: www.cpr.org/news/npr-story/dont-get-your...sthash.aEZfPlof.dpuf

The ASHG Policy Paper:
Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents
Jeffrey R. Botkin, John W. Belmont, Jonathan S. Berg, Benjamin E. Berkman, Yvonne Bombard, Ingrid A. Holm, Howard P. Levy, Kelly E. Ormond, Howard M. Saal, Nancy B. Spinner, Benjamin S. Wilfond, Joseph D. McInerney
ASHG Workgroup on Pediatric Genetic and Genomic Testing
Volume 97, Issue 1, p6–21, 2 July 2015
DOI: dx.doi.org/10.1016/j.ajhg.2015.05.022

"Now, more than ever, the illusions of division threaten our very existence. We all know the truth: more connects us than separates us. But in times of crisis the wise build bridges, while the foolish build barriers. We must find a way to look after one another as if we were one single tribe.” -King T'Challa, Black Panther

The truth is incontrovertible. Malice may attack it. ignorance may deride it, but in the end, there it is. ~Winston Churchill

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