7:45AM – 8:00 AM
Check-in & Light Breakfast

8:00 AM – 8:10 AM
Opening Remarks & Overview of the Day
Host/Organizer Welcome
Explanation of hybrid format and housekeeping

 

Speaker Sessions:
• 8:10 AM – 9:00 AM
Rett and MECP2 research update
Speaker: Dr. Tim Benke

• 9:00 AM – 9:30 AM
Genetics seen at RETT Clinic Colorado
Speaker: Dr. Margarita Saenz

• 9:30 AM – 10:15 AM
Cortical Vision Impairment
Speaker: Elise Darrow (Anchor Center for Blind Children)

• 10:15 AM – 10:45 AM
Nutrition and Diet
Speakers: Laura Watne

 

BREAK – 10:45 AM – 11:00 AM

Community Support & Family Resources:

• 11:00 AM – 11:45 AM
Home Health Services/Palliative/ Hospice Care
Speaker: Vivian (Sena) Yoon

• 11:45 AM – 12:15 PM
Family Voices & Augmentative Communication
Speaker: Emi Yau

• 12:15 PM – 12:45 PM
Trust and Guardianship

Speaker: Mark Reiley (CFPD Trust)

• 12:45 PM – 1:15 PM
CDKL5 research updates
Speaker: Dr. Tim Benke

• 1:15 PM – Q&A
Lunch & Meet and Greet

 

Enjoy lunch, connect with speakers, and continue the conversation in an informal setting.