Invisible Disease Needs Your Help!!!
31 Jan 2012 06:09 #1
by lydian82
Invisible Disease Needs Your Help!!! was created by lydian82
:help: Just recently, LymeDisease.org placed a Petition on their site. It is very important that we get as many signatures on this as possible. Whether you have Lyme Disease or not, the current treatment guidelines for Lyme Disease need to be revised so please sign and have others sign. It is important for the future of the children especially if they don’t fit the “rubber stamp” or “one size fits all” treatment, they then can get the necessary treatment they deserve to avoid “post Lyme Syndrome” symptoms. Those of you that live with chronic pain or illness know how it changes your life, thus, please share this Petition with others so that we can show them the current IDSA treatment guidelines need to be revised.
"Treatment guidelines are tremendously important in determining your medical treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC). NGC requires that guidelines be updated every 5 years.
The IDSA has not revised its guidelines for more than 5 years. Nevertheless, the NGC recently permitted them to continue listing the guidelines – without updating them – based on the IDSA’s claim that the antitrust review process fulfilled NGC review requirements.
The IDSA told the NGC that it had internally reviewed the guidelines in 2011 and decided they did not require change. However, this review is not listed on their application to the NGC nor is the process of any such review disclosed – as required by NGC guidelines;"
In an antitrust review process of the IDSA there were over 25 changes recommended to the guidelines—"none of which have been implemented. There also was no consensus on mandatory lab testing for diagnosis; and
The 2006 guidelines are not current since they do not reflect new science including the Barthold mouse study and the Embers monkey study. Both studies found persistent infection, which is denied in the 2006 guidelines."
As in the review, the IDSA has once again not followed the rules, please we need to stop them from abiding by the rules.
http://lyme-aware.org/news/lyme-blogs/1 ... lines.html
:Thanks:
"Treatment guidelines are tremendously important in determining your medical treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC). NGC requires that guidelines be updated every 5 years.
The IDSA has not revised its guidelines for more than 5 years. Nevertheless, the NGC recently permitted them to continue listing the guidelines – without updating them – based on the IDSA’s claim that the antitrust review process fulfilled NGC review requirements.
The IDSA told the NGC that it had internally reviewed the guidelines in 2011 and decided they did not require change. However, this review is not listed on their application to the NGC nor is the process of any such review disclosed – as required by NGC guidelines;"
In an antitrust review process of the IDSA there were over 25 changes recommended to the guidelines—"none of which have been implemented. There also was no consensus on mandatory lab testing for diagnosis; and
The 2006 guidelines are not current since they do not reflect new science including the Barthold mouse study and the Embers monkey study. Both studies found persistent infection, which is denied in the 2006 guidelines."
As in the review, the IDSA has once again not followed the rules, please we need to stop them from abiding by the rules.
http://lyme-aware.org/news/lyme-blogs/1 ... lines.html
:Thanks:
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